Never Prednisone Never Again…

While I was in the hospital with pneumonia they were giving me Prednisone to reduce the inflammation in my lungs and help to breath easier which it did, however no one warned me about what was going to happen when I was tapered off of it. I have excruciating knee pain it is so bad I can barely walk and if it doesn’t let up by Monday I will be calling my pain management doctor to see what can be done to ease this pain until my body goes back to normal.

My cough is finally getting farther apart with each passing day and that is a good thing because now my muscles around my ribcage and my abdominal muscles can start to heal from nearly a month of muscle tearing cough. I knew it was going to last for awhile after all was healed in my lungs it takes awhile for the inflammation to go away. The oxygen has helped a lot with the healing of my lungs and when I came home with it I fought it I didn’t want to use it, but Dwight convinced me it was best if I gave in and used it and that it would help me to help faster and he was right. I gave in and I now use it most of the day and while I sleep and it really has made a difference so I need to stop being so stubborn lol.

So once I talk to my doctor Monday I will update this with whatever instruction he gives me.

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There is Always Something Else to Try to Make me Miserable…

When I was in the ER on the 3rd when I went there with pneumonia and Sepsis (blood poisoning) they gave me a massive injection of a corticosteroid to help my bronchial passages to be able to open up so I could get more oxygen since I at that point I was pretty much suffocating. I was given Prednisone for my entire stay in the hospital and I just finished them off today. So where is this going? My feet and legs up to my knees are swollen with water retention and the skin is pulled so tight it both hurts and itches. I take a water pill but it evidently is not working with this amount of water retention. Now I don’t want to seem to be ungrateful because it is amazing I lived through all of that crap so huge kudos to all the staff at Northeast Methodist hospital in Live Oak Texas…Mad respect for them all!

The fact still remains though that my feet and ankles are nearly twice their normal size and feel like they are going to pop if I move them the wrong way. It might sound strange but the extra pressure from the fluid being retained around my knees are making them hurt even worse and it decided to storm today so yup I feel as though someone is stabbing me up under both kneecaps and is making me walk like I am about 90 years old. Even so I still managed to fry chicken and make me some spinach for dinner. I figure I was going to hurt anyway so I might as well eat a good home cooked meal (doesn’t that just sound crazy?). I also wanted Dwight to have some nice fried chicken when he comes home from work around 2am because he is so sweet, loving, caring, and does his best to take care of me. He has become even more loving and caring not wanting me to do anything. I had explain to him I need to do things even if they are just small things right now or I will lose what is left of my mind lol.

My neck, back, and knee injections have been put off indefinitely because I cannot be put into even twilight sleep with my lungs as they are right now especially since I am still on oxygen and until I can see a pulmonary doctor and be tortured I will be on oxygen. I have to keep reminding myself it has only been 11 short days since I was released from the hospital so I also have to remind myself that I am still not well yet and it is going to be a long time before I am. It is difficult for me dealing with this illness and I am sure most people would do a double take since I am use to dealing with doctors and my pain issues, but that is what makes it difficult because my mind is already so deeply invested in keeping my pain manageable through doctors appointments, injections, medication, and physical therapy ( or the tedious search for things I can do to help strengthen my lower back) that I am just plain getting mentally drained at this point. It is also frustrating that I cannot get my injections because they do help a lot, but I also know it would not be safe at this time so I must maintain patience and know that my doctor is just looking out for my best interest because putting me under even in twilight could make me stop breathing or cause the pneumonia to return with a vengeance which I of course don’t need either to happen. That being said I still want to scream well that is if I could get a deep enough breath to do so which I can’t lol.

I have however been 10 days free of smoking so YaY me!!! I am vaping or some people call it juicing and it is a thousand times safer than smoking. I did my research and I know there are people saying it contains antifreeze but common sense tells me that is not true because if you inhaled that it would cause some pretty bad health issues right away so no there is no antifreeze in e-juice. So that is all for this day I hope all of you are are happy, healthy, and most of all blessed by God!

God bless you all until next time…God willing!

Sometimes Things Take a Turn For The Worst…

So as of my last entry I was going back to see my pain management doctor on June 3rd…well that was the plan but sometimes even the best laid plans are thwarted.

About a week before I was to go back to the doctor excited to get my trigger point shots ( I know excited to get poked across the back with needles crazy right, but it is not so bad and the benefits are great.) Dwight (the love of my life.) started sneezing and I am freaking out a little because I get sick easily since I am diabetic but as a days pass and I haven’t caught anything I decide it is allergies and I began to relax and that was a big mistake that came close to costing me my life.

Late on the first of June he developed a deep cough then about midday on the second I started to cough, I really didn’t feel sick but the cough was getting deeper and my chest felt heavy really heavy so I had Dwight pick up some Mucinex for me and I took some and crawled into bed wanting nothing more than to sleep and for several hours I got just that, but when I woke up not only could I not breath except in shallow breaths anything deep caused several minutes body wracking coughs that ended in vomiting with me shivering from head to foot feverish with clouded mind I tried seek comfort moving from spot to spot for awhile but it wasn’t to be found.

Sometime in the wee hours of the morning I was totally exhausted and starting to slip away, however every time I would slump over our little girl kitty Lil Bit would pounce on me yelling at the top of her lungs and when that didn’t work she dug her claws into leg, back, or stomach until I would sit back up. She did this until Dwight came home at 4am as soon as he came in she ran to him trying to let him know I was in danger. So off to the ER I went and that is where the fight for my life started and it was a battle that was waged for hours in the ER before I could be taken to a room.

The diagnoses was pneumonia with my left being nearly full of fluid and phlegm (such a gross word lol) my right lung was about half full and I was suffocating. Once I was stable they had CT scan taken and my lymph nodes in my chest were three times their normal size which explained the 22000 white cell blood count and it was going up still so they took blood from an artery and cultured it and it was positive for blood poisoning ( Sepsis ). That was the last piece to the puzzle and what was killing me quickly.

Before leaving the ER I was given an injection of a massive amount of a steroid like Prednisone that helped with inflammation in my bronchial tube to help open me up to breath better. Then I got my first coctail of IV antibiotics. Once they moved me up to my room it was in intermediate care which for those just leaving ICU and I realized I had (with God’s healing hand) dodged the bullet it yet again.

I am home now but hooked to oxygen for I don’t know how long but I am alive and getting better daily.  I wrote this all out from my phone and I did it because I wanted plead with you all that if you become ill listen your body it will tell you when you are in danger. If had ignored what my body was telling me I would have been dead before from the blood poisoning it ravishes your internal organs pretty quickly and never knew you could even get blood poisoning from pnuemonia so take care of yourselves listen to your bodies.

God bless you all until next time God willing!